Assessment

Sorry for the lengthy silence. I have been struggling with decisions that need to be made and my own personal demons about them.
Bobs decline and current behaviors are ever changing but the last few weeks it has been almost shocking to see the changes. Not being able to communicate anything but the jumbled word salad (as I call it)  has made things even more difficult.
He had his home health assessment this past week and I am waiting for the finalized report to give to prospective Residential Care Homes.  Bob did not do well on the testing and of course he really hasnt done well on it in a very long time.
After evaluating Bob and testing him they said there were several options available at this time but they highly recommended the Residential Care. Assisted living was decided against because he eats things he shouldnt and also of his toileting problem. They thought it would not be in his best interest to be unsupervised for any length of time. Home care was also an option but the Social Service worker thought the house was much to small for this to be a convenient option. Their theory was that Bob would still be trying to rely on me for help and refuse others if he could see me. Which I know is probably true.
That leaves the residential care home or Nursing Home.. The thought is to start with the least restrictive care of the Residential and then the nursing home if they have a problem with his combative nature.
All of these decisions have left me with a knot in my stomach and a very heavy heart.

Piddle Schmiddle

I just want to address a problem issue a little bit.. Its not really incontinence issue as much as a
where we should go issue.
Bob no longer uses the bathroom by himself and you really need to be with him constantly to prevent him from going where ever he feels like it.
Floors, Closets, shoes, drawers, clothes hampers, garbage cans etc have all seen there fair share of pee around here. I have tried taking him to the bathroom every hour and sometimes even more. I have tried putting him in a Onesie, which he just tore at till the snaps popped off. My next step is the jumpsuits that zip in the back.
Every  single time I walk Bob to the bathroom to get him where he should be to do his business.. tell him what, where, how... He looks at the toilet and says "there?" and looks disgusted... I am not sure exactly what Bob thinks the toilet is theses days.. but he sure doesnt recognise it for its intended purpose.
I am tired of cleaning urine... Ugh...
Those jumpsuits will not arrive soon enough.. I am going to try and sew one myself with a sweatshirt, and pants and a big long zipper. At least he wont be able to go without help which will give me a chance to guide him to the toilet and convince him that is where he should be going. Wish me luck.